Sara Jean never comes here to "Pitchpull", so I intend to use the blog to update you on what is going on in our dementia experience.
(She reads ALL my FaceBook posts and has already forced me to delete some of my comments there.)
Yesterday she was chatting with someone on FB and turned to me to ask, "How do you spell 'us'"?.
Seeing my reaction she realized the depth of her question and started to cry.
This is no longer my wife. The disease has taken over.
Today her temper is on a hair trigger. I cannot point out changes in her behavior without getting an angry response. I MUST learn to be more careful with my answers to her questions.
I married this beautiful woman "For better or worse; in sickness and in health."
The road we are traveling will be more and more difficult as we continue.
I don't seek sympathy here. I know how this story unfolds.
I just need a place to vent.
If you see "Lewy Body" in the subject line, you may want to skip what follows.
19 February 2025
Lewy Body, Update 1-
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6 comments:
Vent all you want. Most of us reading your blog have dealt with, or are dealing with, loved ones with major problems. Life is a bitch, then it has puppies. On both sides of my extended family it is mostly cancer.
My aunt who raised me, my bio mother and hubby. All Alzheimer. So vent all you want as we know the day to day. But please make sure you get at least some time for yourself. It's critical for your ability to cope 24/7/365.
Vent as required. We are still praying for y'all.
Life can be so hard and we don't get choices for what we face. I feel for you. One of our best friends got what is know as Lou Gehrig's disease. Horrible and a loss of thinking and the body. Old age is just tough and begins earlier for some. Sorry for her and you.
You'll never be able to take care of her if you don't take of yourself. The better your mental health, the better decisions you will be able to make. Best to you.
Vent. I will never skip.
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